Floating Harbor Syndrome Support Group

Please contact us via e-mail at:  littleflock@gmail.com  if you would like a sample newsletter or more information about our group which has over 50 member families.     Please also contact us regarding any questions you may have regarding FHS.  We have many experienced parents in our group and are also in contact with several doctors who are very familiar with FHS and are willing to answer any questions via e-mail or phone if necessary.  

 
Chelsea, 19

Andy, 18

Sophie, 9

 DISTINCT FACIAL FEATURES OF FHS:

* broad, thin lips

*  short philtrum

(distance between the nose and mouth)

* prominent nose

* triangular shaped face

* ears rotated slightly backward

Size comparison, from left to right:

age 3,  age 10, and age 13 (FHS).   

For  a size comparison, Jesse at age 13,  with his sister Mary, age 6.  FHS children are often thin and have NO body fat. They have long, thin limbs even though their overall height is dwarfed.