1964 Sheffield Rd.
Harmony, NC 28634
ph: 336-492-2641
littlefl
Please contact us via e-mail at: littleflock@yadtel.net if you would like a sample newsletter or more information about our group which has over 50 member families. Deana Swanson, the volunteer coodinator, has studied all medical journal articles on Floating Harbor Syndrome extensively for the past 10 years, interviewed geneticists and several specialists regarding Floating Harbor Syndrome, is in contact with several FHS families including one of the oldest known FHS patients (age 35), and is willing to answer any questions via e-mail or phone if necessary. She is also mom to Jesse, age 14, who has FHS.


Sophie, 9, The Netherlands Chelsea, 19 USA


Neeve, England Andy, 18, USA
DISTINCT FACIAL FEATURES OF
Floating Harbor Syndrome:

Note the wide, thin mouth and short philtrum (distance between nose and lips)



1964 Sheffield Rd.
Harmony, NC 28634
ph: 336-492-2641
littlefl